Sorry for not updating you all on John’s condition… Life has been getting in the way!

John was released from hospital last week, but is still being monitored weekly. It’s definitely MPGN and the version John has is a complication of Hep C which causes kidney disease. His kidneys are approx 40 – 60 % damaged (eek) but the good thing is that it was caught in time before it got any worse.

According to the specialist, the damage was quite rapid and acute – it all only started to happen over the past few weeks! John’s loss of sight was definitely related.. He’s got huge amounts of pills to take and is on a low-phosporus, low-sodium, low-potassium diet, which is very restrictive (eg/ No more than 90g of protein a day, 1/2 glass of milk, no more than a handful of legumes, certain fruits and vegies are out, wholegrain is out, bread is a fucking nightmare of a mine field). We are going through an adjustment period working out what he can and cannot eat.

But it could so easily have been much worse. If John hadn’t been seeing the specialists at the Sydney Eye Hospital, his kidney function would not have been tested and he wouldn’t have been sent to the Kidney Clinic. A couple of days later and who knows what would have happened. In any case, the specialists say that if all goes well and he follows his treatment plan there is a good chance it won’t progress to end-stage kidney disease, but it’s still pretty significant damage.

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February 2004
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